Apple!!

The title of this post is because when we walked up that’s what Ben yelled – APPLE! Safe to say he’s a fan.

A bit of background for those not familiar with his story – you can read a snippet here and see some photos of Ben just after he was born and in the NICU. Eager to join the party, Ben arrived at just 23 weeks gestation and weighed only 22 ounces (630 grams.) He developed an eye condition because of his early entrance which has caused him to be visually impaired. Thankfully he can still see relatively well from one eye, enough that he can read print up close and uses a magnifier. Unfortunately his vision will continue to deteriorate over time and there’s no way to know how much vision he may maintain.

Not that it slows him down at all!

We were encouraged to give him lots of visual memories before he loses more eyesight so he made up a wish list. We were amused he asked to go see the Apple Store! We told him we weren’t sure when we could make that happen but we would try someday. One morning we woke them up early to “run an errand” and this is what happened next… (more background story is included below the gallery.)

From almost the time Ben could walk he’s been obsessed with our various Apple devices. He would sneak off with them as a tiny toddler and drop them or do other destructive things. He sucked on a few power cords as a baby and shorted them out. He had a super power of finding them no matter how far we hid/buried them away behind the couch. It got to the point that we were visiting the Apple store so often when we walked in they would greet him by name and say, “Hi, Bennett! What did you break??”

Thankfully he outgrew this habit and we’ve not been to the store in years since Apple stuff really is durable. Funny that the other five kids haven’t been able to do any damage when he did so much – we joke Ben was doing crash testing on it, research for his future career at Apple building gear you can’t destroy. I want him to work on shatter proof screens since I broke one of those.

When I was on bedrest a few years back with our youngest child the older ones had a field trip to the Apple store. Bedrest meant we couldn’t all go and sad Ben had to stay home with me. During the trip the kids composed songs with Garage Band and got yellow t-shirts – Ben’s favorite color. This left quite an impression on Ben and when asking about his wish list for trips and places to see he said the Apple store! To get a yellow shirt and ask the Geniuses questions and play on an iPad! We thought that was an easy request to fulfill, though we weren’t sure if we can manage the t-shirts since we’re not an official field trip.

We had mentioned his wish on Facebook because we thought it was so funny and to our surprise learned – wait, apparently we know some people who have Apple connections! They contacted us and asked some questions and started making some plans and were absolutely fantastic every step of the way. While we were hoping to just visit the store and let Ben play at the kid table, the Apple folks had so much more in mind.

Over the last few years Ben’s various vision team members have talked about how wonderful the iPad is as an assistive device. Kit researched and learned more about the amazing technology it has to help people with visual impairments & the long list of apps great for kids with visual disabilities. Even built in features like Siri can make a significant difference in the day to day lives of someone with a vision challenge. We just didn’t know how to make that happen with the budget, so it was something we kept in the back of our minds but hadn’t pursued. Once again little miracles started to fall into place with offers of help, surprises here and there, and so much support and love from friends and family. Suddenly the dream of an iPad for Ben was becoming a reality!!

One night Ben came into my room after bedtime and asked if I could learn more about taking a field trip. We looked online and I told him the field trips aren’t being planned until spring but maybe we could go then? I also told him they don’t sell those special yellow shirts, those are just for field trip kids. We talked about making it happen someday and when he saw the picture of the store online he said, “Wow… awesome!” So he kept hoping to see Apple but knew he needed to patiently wait.

Meanwhile we plotted and planned and this morning we told the kids we needed to run some errands and meet Shannon to return some things to her. Shannon happens to be a dear friend and photographer and she had so sweetly offered to be there to document this experience. There was much texting and coordinating going on as we got up early (before the store opens to the public) and headed out. The kids knew we had a surprise for them but we needed to meet our friend at the mall first. As we walked up to find her what did we happen to see?

The Apple Store.

And what was happening there? Rows of people all dressed in red clapping and cheering and welcoming our family. As you can see in the photos, Ben’s face just LIT UP when he recognized the store. When he realized he was allowed to go inside??? He was stunned. When they greeted him by name? SHOCK! He got a bit bashful as he passed so many people cheering for him. (He later said he felt like a celebrity and wanted to know how they knew his name???)

They did a mini tour & he was allowed to stand behind the Genius bar, which was so impressive to him. Then he asked me if he could play on one of the iPads at the little table like the kids were doing before we left. We sat down and explained not only could he play on one – but the one they had just shown him was FOR HIM. People who loved him had helped make it possible for him to have an iPad of his very own.

Shock. He just sat there staring at the box straight faced. It was probably a good minute before he blinked and asked, “For me?” Yes, I explained – for you to play on not just now but to KEEP. More shock.

The reality set in when they handed him the box to open and he was all smiles. He lifted it out of the box and said, “I get a charger??” Yes, an iPad AND a charger! :) (He’s so easily impressed, I love it.)

Then they spent time talking with him about the assistive technology and zoom and reading books on it and Garage Band and games and Siri. We need to go back for sure to learn more about all of it, Kit said there’s tons we need to explore for Ben. Then I got lots and lots of tight squeeze bear hugs as the reality sunk in for Ben – he got to visit Apple! And tour it! And see a computer and the genius bar and talk to so many sweet people and he got an iPad!! And a t-shirt! Then he told me, as he hugged me tight again, “This goes on my list of best days ever!!”

So to everyone who helped make this possible – thank you from the bottom of our hearts. You made his dream come true, and I know that every single day of his life will be enriched by having this as a resource and tool for independence. Okay, and he’ll just have fun with it, too!

P.S. We’ve been asked how the other kids are handling this situation with B’s vision loss and how they reacted to seeing B get something this big. You can read their responses here.

P.P.S. For our new visitors coming through links to this post – WELCOME! Ben’s been reading your comments and loving every single one. He’s grinning ear to ear knowing that his story is helping other people feel happy. Thanks for your kind words and support! If you have any questions please feel free to contact us – we can be reached at heidi@thadenpierce.org.

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25 Responses to Apple!!

  1. James says:

    I think this is one of my favorite entries.

  2. Gregory Lawhorn says:

    This brought tears to my eyes! My son, Kevin, is 25, and physically and mentally handicapped. For him it was having his own Nintendo DS, but he has an iPad, too. Tell Ben that it’s awesome when our dreams come true, and just as good when we help someone else’s dreams come true!

  3. Josh says:

    As a former Apple employee and somebody who is known by his friends as a robot without any emotions, this just made me tear up a bit. Great family and great story. Thanks for sharing. Your kid is awesome.

  4. Roy Chalmers says:

    It’s stories like this that Makes My Day. Thank You.

  5. Brittany says:

    I am a manager at an Apple store & this story made me tear up and simultaneously smile from ear to ear. I’m so proud to work for a company where miracles like this happen every day. I wanted to share with Ben that at my Apple store, I have a blind employee. He comes to work every day at Apple with his service dog, who works right along his side every day. Because our technology has built in access ability features like voice over, our blind employee can do anything our other employees can do. I just want Ben to remember this as he grows up & may have days where his condition discourages him. There is a way to fulfil your dreams no matter what! Luckily, Apple works very hard to try & make it easier along the way. (Apple even custom makes business cards in Braille for our blind employees!!)

  6. lukasz says:

    It’s the best story for the Christmas. Wish You all the best.

  7. Brian Allen says:

    Great story and all the best to you.

    I just wanted you to know that your link first sentence has an error in it. The link show this href=”http://http://thadenpierce.org/?p=6368″, which likely shouldn’t have the extra http:// part.

  8. Heidi says:

    THANK YOU for your kind comments! Brian, I appreciate you pointing that out, I just fixed it. Brittany, the kids are fascinated by the idea of a dog at the Apple store and wondered if the dog had its own name badge and Apple logo on the service vest. :)

  9. David says:

    Thank you Ben for inspiring me and helping me understand how to live life to the fullest !

  10. Laurie says:

    I found your blog through MacStories. This is going on my list for best family EVER!!! You guys are really sweet. Thanks for sharing your story.

  11. Luis Perez says:

    A friend posted this on his Facebook timeline and I’m so glad I took the time to follow the link. What a great experience for Ben! I too have a visual impairment, though mine was not diagnosed until I was an adult. Tell Ben that he can be anything he wants to be in life. I have less than 10 degrees of vision but I love photography and use my iPhone and iPad as my primary cameras because of their accessibility features. I would love to connect and see if there is anything I can do to help.

    All the best and happy holidays!

  12. Justin says:

    What a great day for Ben! You can see his joy in every picture!

  13. Randa says:

    My family and I are the user of Apple. It’s great . Thanks for your sharing.

  14. Chris says:

    As an Apple employee and a child with special needs, you realize that life is not linear, however if you look carefully you begin to discover so many wonderful and amazing gifts. Thanks for sharing your special gift with all of us and helping to enrich all of our journeys through life. Ben is a great inspiration and special young man.

  15. Gregory Varnum says:

    Thank you for sharing this amazing story! God bless Ben and your family. This story is inspirational and a reminder of why I am so fond of both Apple’s products and the company itself. Also, kudos to the parents – just the way this story unfolded is evidence of how fortunate Ben is to have you as his parents.

  16. John L says:

    I am the blind employee Brittany mentioned in comments earlier. I just wanted to say that yes, in fact, Clint (my guide dog) does have an apple on his harness. He went red for the holidays, too!! Also, I’m always more than happy to answer any questions you may have about blindness, working at Apple (unless it’s confidential), and basically anything else I can do to provide information/insights. :D

  17. Daniel says:

    Hello from Apple in Las Vegas! I am a trainer for Apple. Your story is so heartfelt and touching. I’m sure I speak on behalf of everyone that I work with in saying that we’re so happy for you, Ben! Congratulations! You and your family are exactly why we do what we do every day. Not only do we get to help enrich your lives, but you enrich ours. Enjoy your new iPad! :)

    Daniel

  18. Nandan Desai says:

    Just an amazing experience that brought tears to my eyes! God Bless. I hope Ben is happy with this choice and can make the most out of an iPad.

  19. Natalie says:

    I have a son named Ben as well. He is legally blind too. He loves the iPad as well. I am so glad that you’re been got to experience the Apple Store. Your story touched my heart. Have a wonderful Christmas God bless you all.

  20. Heidi says:

    Luis, Ben was excited to hear about a photographer with a limited visual field like him! He’s been playing around a lot more with the camera on the iPad, thank you for telling us more about your story.

  21. Heidi says:

    Gregory, thank you! We still feel like brand new parents making this up as we go but we sure hope to provide them all the love and support they need to tackle any challenge they face.

  22. Heidi says:

    John, the kids are very curious if they may see a picture of Clint. :) We’re playing catch up with emails and messages but we would love to get in touch with you to get some ideas for things like good apps to help him utilize the iPad best.

  23. Heidi says:

    Daniel, Ben’s response was, “There’s an Apple store in VEGAS??” (Little did he realize how many there are across the globe.) But since Las Vegas is on our trip list hopefully on the way to California your message caught his attention. Thanks for leaving a note!

  24. EmAManda says:

    I am so happy for you, Ben!
    I loved reading this story.
    From one iPad owner to another, Happy New Year…
    :-)

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