The title of this post is because when we walked up that’s what Ben yelled – APPLE! Safe to say he’s a fan.
A bit of background for those not familiar with his story – you can read a snippet here and see some photos of Ben just after he was born and in the NICU. Eager to join the party, Ben arrived at just 23 weeks gestation and weighed only 22 ounces (630 grams.) He developed an eye condition because of his early entrance which has caused him to be visually impaired. Thankfully he can still see relatively well from one eye, enough that he can read print up close and uses a magnifier. Unfortunately his vision will continue to deteriorate over time and there’s no way to know how much vision he may maintain.
Not that it slows him down at all!
We were encouraged to give him lots of visual memories before he loses more eyesight so he made up a wish list. We were amused he asked to go see the Apple Store! We told him we weren’t sure when we could make that happen but we would try someday. One morning we woke them up early to “run an errand” and this is what happened next… (more background story is included below the gallery.)
B realizes where we are.
The grin!!
Everyone was clapping and we had to explain it was for him, and he could walk in!
Being welcomed to the store.
Bashfully walking in as people are clapping and cheering and greeting him by name!
The kids saw iPads! On a kid sized table! They could play with!!!
Pretty much they sat there the entire time discovering new games they wanted.
A special mini table at the genius bar.
He’s practicing being a genius. 🙂
He was telling me he wanted to play on an iPad before we left the store like the other kids were doing.
Explaining that this iPad he just saw in back was actually…
For him!
Shock. He just sat there in shock as the news sunk in.
More shock.
Explaining he’s allowed to open this.
Emy hearing the news and hugging me because she’s so excited for Ben.
I think it’s becoming more real.
It’s real!!
The expression…
He approves!
Ben had just announced this is going on his list for best day EVER!!!
From almost the time Ben could walk he’s been obsessed with our various Apple devices. He would sneak off with them as a tiny toddler and drop them or do other destructive things. He sucked on a few power cords as a baby and shorted them out. He had a super power of finding them no matter how far we hid/buried them away behind the couch. It got to the point that we were visiting the Apple store so often when we walked in they would greet him by name and say, “Hi, Bennett! What did you break??”
Thankfully he outgrew this habit and we’ve not been to the store in years since Apple stuff really is durable. Funny that the other five kids haven’t been able to do any damage when he did so much – we joke Ben was doing crash testing on it, research for his future career at Apple building gear you can’t destroy. I want him to work on shatter proof screens since I broke one of those.
When I was on bedrest a few years back with our youngest child the older ones had a field trip to the Apple store. Bedrest meant we couldn’t all go and sad Ben had to stay home with me. During the trip the kids composed songs with Garage Band and got yellow t-shirts – Ben’s favorite color. This left quite an impression on Ben and when asking about his wish list for trips and places to see he said the Apple store! To get a yellow shirt and ask the Geniuses questions and play on an iPad! We thought that was an easy request to fulfill, though we weren’t sure if we can manage the t-shirts since we’re not an official field trip.
We had mentioned his wish on Facebook because we thought it was so funny and to our surprise learned – wait, apparently we know some people who have Apple connections! They contacted us and asked some questions and started making some plans and were absolutely fantastic every step of the way. While we were hoping to just visit the store and let Ben play at the kid table, the Apple folks had so much more in mind.
Over the last few years Ben’s various vision team members have talked about how wonderful the iPad is as an assistive device. Kit researched and learned more about the amazing technology it has to help people with visual impairments & the long list of apps great for kids with visual disabilities. Even built in features like Siri can make a significant difference in the day to day lives of someone with a vision challenge. We just didn’t know how to make that happen with the budget, so it was something we kept in the back of our minds but hadn’t pursued. Once again little miracles started to fall into place with offers of help, surprises here and there, and so much support and love from friends and family. Suddenly the dream of an iPad for Ben was becoming a reality!!
One night Ben came into my room after bedtime and asked if I could learn more about taking a field trip. We looked online and I told him the field trips aren’t being planned until spring but maybe we could go then? I also told him they don’t sell those special yellow shirts, those are just for field trip kids. We talked about making it happen someday and when he saw the picture of the store online he said, “Wow… awesome!” So he kept hoping to see Apple but knew he needed to patiently wait.
Meanwhile we plotted and planned and this morning we told the kids we needed to run some errands and meet Shannon to return some things to her. Shannon happens to be a dear friend and photographer and she had so sweetly offered to be there to document this experience. There was much texting and coordinating going on as we got up early (before the store opens to the public) and headed out. The kids knew we had a surprise for them but we needed to meet our friend at the mall first. As we walked up to find her what did we happen to see?
The Apple Store.
And what was happening there? Rows of people all dressed in red clapping and cheering and welcoming our family. As you can see in the photos, Ben’s face just LIT UP when he recognized the store. When he realized he was allowed to go inside??? He was stunned. When they greeted him by name? SHOCK! He got a bit bashful as he passed so many people cheering for him. (He later said he felt like a celebrity and wanted to know how they knew his name???)
They did a mini tour & he was allowed to stand behind the Genius bar, which was so impressive to him. Then he asked me if he could play on one of the iPads at the little table like the kids were doing before we left. We sat down and explained not only could he play on one – but the one they had just shown him was FOR HIM. People who loved him had helped make it possible for him to have an iPad of his very own.
Shock. He just sat there staring at the box straight faced. It was probably a good minute before he blinked and asked, “For me?” Yes, I explained – for you to play on not just now but to KEEP. More shock.
The reality set in when they handed him the box to open and he was all smiles. He lifted it out of the box and said, “I get a charger??” Yes, an iPad AND a charger! 🙂 (He’s so easily impressed, I love it.)
Then they spent time talking with him about the assistive technology and zoom and reading books on it and Garage Band and games and Siri. We need to go back for sure to learn more about all of it, Kit said there’s tons we need to explore for Ben. Then I got lots and lots of tight squeeze bear hugs as the reality sunk in for Ben – he got to visit Apple! And tour it! And see a computer and the genius bar and talk to so many sweet people and he got an iPad!! And a t-shirt! Then he told me, as he hugged me tight again, “This goes on my list of best days ever!!”
So to everyone who helped make this possible – thank you from the bottom of our hearts. You made his dream come true, and I know that every single day of his life will be enriched by having this as a resource and tool for independence. Okay, and he’ll just have fun with it, too!
P.S. We’ve been asked how the other kids are handling this situation with B’s vision loss and how they reacted to seeing B get something this big. You can read their responses here.
P.P.S. For our new visitors coming through links to this post – WELCOME! Ben’s been reading your comments and loving every single one. He’s grinning ear to ear knowing that his story is helping other people feel happy. Thanks for your kind words and support! If you have any questions please feel free to contact us – we can be reached at heidi@thadenpierce.org.
I admit that touring a water tower struck me as possibly the weirdest of Ben’s wishes. A water tower?? Huh?? But apparently to a nine year old that was fascinating, we just had no idea how we could make that happen. Water towers tend to be surrounded by locked fences, and we weren’t sure that they routinely host field trips! So you can imagine our surprise when we were contacted by Jennifer at the Mustang Special Utility District and she was offering Ben a tour!
We drove out one afternoon to check out the office and the kids saw how the water levels are reported for each tower to the central office. They had lots of questions and were fascinated by the map. I think J, our five year old, wins for most entertaining inquiries! They also gave the kids some really fun goodies – I snitched one of those flashlights for my doula bag, and the cooler bags and cups are being used constantly. (Who knew utility districts had such fun swag, right?? Frisbies??) Then we drove down the road to the water tower itself – and it was huge, and I tried to NOT think about the fact that we were standing inside a water tower under this massive amount of water. The kids had lots more questions and they thought the echoing tower was way too much fun and Ben learned lots about how it all works.
Jennifer & the Mustang folks had learned about us through the Denton Record Chronicle article in February and they invited the paper to come back out for a follow up story. Though I admit we were really surprised to see the kids made the front page again! Both stories were really sweet & well done and we’re always happy to share Ben’s amazing story. He’s a pretty fantastic kid, and he’s grateful that so many people have been helping make his wishes come true – however funny and random they may be! Thank you to John and David for the great article and you can read it here, see some more photos, and read J’s funny questions about the towers. Thank you to Jennifer for providing all of these photos in the gallery, and thank you to all the folks at Mustang SUD!
